Lyme Update

Thank you to everybody who has been wishing me well and praying for me! 

I wish I could say that I'm all better now, but I can't. I DO think that most of the symptoms from the Lyme Disease have resolved: no fever, chills, aches, etc.

However, the facial paralysis triggered by the Lyme is the most difficult part to deal with. I never imagined all the things that would be affected by half of my face not moving (though I should have since my nephew has a host of health issues because of his paralysis). Some of the things affected are:

My eyes:  My right eye doesn't blink. I can close it, but only partially. Enter a host of eye drops (the two boxes were samples from my eye doctor) to help keep my eye hydrated and protected. I have tried unsuccessfully to tape my eye shut at night. Also, my vision is often blurry in that eye. From what I read online, that's normal for this condition.

New additions to my bathroom counter

My mouth:  My tongue feels funny, and I can't taste on the front of my tongue. I can't use my muscles properly to move food around in my mouth, and I can't properly open my mouth to eat. This was interesting when I tried a sushi roll yesterday; I had to use a fork to cut each piece smaller. I prefer to use a small straw to drink; if I don't have a straw, I have to use my other hand to push my lip agains the edge of the cup so I don't dribble out everywhere. Cleaning food out of my right cheek is difficult, and spitting is impossible to do in a proper fashion. (Is there a proper way to spit?)

My speech is a little slurred, and I certainly can't whistle. 

My ear: My right ear is quite sensitive to sound. Sometimes sounds are a little distorted. 

The big one is PAIN:  The right side of my face and neck and my right ear have a lot of nerve pain! Sometimes the pain is so bad that I can't sleep. The pain has sometimes caused me to despair. Yesterday I went to my doctor and she gave me some good recommendations for pain relief. 

One was acupuncture, and I had my first appointment last evening. I was impressed by that doctor. She was very experienced and had an air about her that gave me much confidence. The treatment did relieve my pain for a time, but more importantly, when the needles were in, my mouth barely drooped. The doctor said that is a good sign. I suppose the muscles were responsive. Whether or not it foretells recovery, it at least gave me some hope. I have another appointment scheduled next week.  (Also, for those who might be wondering, the acupuncture treatment was not uncomfortable.)

As I wait for further healing, I am trying to continue to rest, continue to take my medicine, and continue to try to eat well (a pot of nourishing and healing chicken broth will be made today). My friend cautioned me not to jump right into doing my work around the house again so that I can continue to heal. She is a wise friend, and I will follow her advice.

I Don't Even. . .

 Overheard:

"Mommy, I can lick my armpit!"

Words fail me.

Not Loving Lyme

Two weeks ago I was scrambling about trying to get costumes sewn for a Regency Ball. Now life is quite different. About a week ago it became very clear that the flu-like symptoms plus jaw pain I had been feeling for a couple days were not hormonal after all. After talking to my doctor, we decided what I was experiencing was likely Lyme Disease from an unseen tick bite. She called in a prescription, and I started the antibiotic right away.

The next day, we found the telltale sign-- the bull's-eye rash-- in a place I never would have seen that tiny, old tick! Later the headache pain was so bad that my husband took me to the emergency room where just about every test was performed-- from COVID to spinal tap to x-rays and beyond! The only test that showed bad stuff was the Lyme test. The nice staff gave me a bag of fluids and some pain medication which helped so I could sleep that night. I came home and slept. 

Two days later, I started feeling some weird stuff going on in the right side of my face. Twitches. More pains. A little numbness. This was one Lyme symptom I really hoped would bypass me-- facial paralysis.

Day 1 of facial paralysis

My eyes were not blinking normally, and I couldn't smile. Since then, the paralysis is worse. I can't make it look like a smile no matter how hard I try! (If you want to see me smile, cover up that droopy side of my face.)

Today's "smile"--much droopier face!

The paralyzed right side of my face produces a good deal of nerve pain. Chewing is painful, talking is painful, lots of light and sound are painful. I'm learning new ways of eating and drinking. I'm trying not to frighten my children. I avoid laughing (because it hurts!). Brushing teeth is interesting. And talking is purely functional for necessities to my family, so if you call, please don't be offended if I can't talk. I'm sorry that the children don't always give out good information, so I'll try to post updates from time to time. BUT looking at screens for very long isn't easy, and did I mention it's nearly impossible for me to read, too?

So what have I been up to? Well, I'm pretty tired most of the time, so I'm usually in my darkened bedroom sleeping or just resting away from sound and light. I also slowly eat my (often ground into mush) meals with a baby spoon so my antibiotics won't upset my stomach.

My friend Marti reminded me (literally as my face was becoming paralyzed) that I didn't have all those other things I was testing for: I didn't have a brain tumor, I didn't have fatal meningitis, I didn't have a brain aneurysm. I have a treatable disease. For that I am thankful to God (and to Marti for the reminder).

And as always, there's a silver lining to this cloud: I'm losing some weight :) And praying. And resting. And trusting God that all will be well. 

At supper this evening, I complained, "This is NOT how I wanted to spend my summer!" My son said, "There's a song about that!" Then he grabbed his phone and played for me the Minions' version of a Rolling Stones' tune:  "You Can't Always Get What You Want." Thanks, son.

Please, please, please read about Lyme Disease and its symptoms. Those tiny ticks are so small that even when they are in more visible places, they are hard to see! But if you can recognize the symptoms (and there are soooo many of them) without looking only for a bull's-eye rash (because it isn't always there!), you can get treatment early so that it doesn't become a chronic issue. Please do this for your own health and for the health of those you love.

And I've written about our experiences with Lyme Disease before here and here and here.