Not Loving Lyme

Two weeks ago I was scrambling about trying to get costumes sewn for a Regency Ball. Now life is quite different. About a week ago it became very clear that the flu-like symptoms plus jaw pain I had been feeling for a couple days were not hormonal after all. After talking to my doctor, we decided what I was experiencing was likely Lyme Disease from an unseen tick bite. She called in a prescription, and I started the antibiotic right away.

The next day, we found the telltale sign-- the bull's-eye rash-- in a place I never would have seen that tiny, old tick! Later the headache pain was so bad that my husband took me to the emergency room where just about every test was performed-- from COVID to spinal tap to x-rays and beyond! The only test that showed bad stuff was the Lyme test. The nice staff gave me a bag of fluids and some pain medication which helped so I could sleep that night. I came home and slept. 

Two days later, I started feeling some weird stuff going on in the right side of my face. Twitches. More pains. A little numbness. This was one Lyme symptom I really hoped would bypass me-- facial paralysis.

Day 1 of facial paralysis

My eyes were not blinking normally, and I couldn't smile. Since then, the paralysis is worse. I can't make it look like a smile no matter how hard I try! (If you want to see me smile, cover up that droopy side of my face.)

Today's "smile"--much droopier face!

The paralyzed right side of my face produces a good deal of nerve pain. Chewing is painful, talking is painful, lots of light and sound are painful. I'm learning new ways of eating and drinking. I'm trying not to frighten my children. I avoid laughing (because it hurts!). Brushing teeth is interesting. And talking is purely functional for necessities to my family, so if you call, please don't be offended if I can't talk. I'm sorry that the children don't always give out good information, so I'll try to post updates from time to time. BUT looking at screens for very long isn't easy, and did I mention it's nearly impossible for me to read, too?

So what have I been up to? Well, I'm pretty tired most of the time, so I'm usually in my darkened bedroom sleeping or just resting away from sound and light. I also slowly eat my (often ground into mush) meals with a baby spoon so my antibiotics won't upset my stomach.

My friend Marti reminded me (literally as my face was becoming paralyzed) that I didn't have all those other things I was testing for: I didn't have a brain tumor, I didn't have fatal meningitis, I didn't have a brain aneurysm. I have a treatable disease. For that I am thankful to God (and to Marti for the reminder).

And as always, there's a silver lining to this cloud: I'm losing some weight :) And praying. And resting. And trusting God that all will be well. 

At supper this evening, I complained, "This is NOT how I wanted to spend my summer!" My son said, "There's a song about that!" Then he grabbed his phone and played for me the Minions' version of a Rolling Stones' tune:  "You Can't Always Get What You Want." Thanks, son.

Please, please, please read about Lyme Disease and its symptoms. Those tiny ticks are so small that even when they are in more visible places, they are hard to see! But if you can recognize the symptoms (and there are soooo many of them) without looking only for a bull's-eye rash (because it isn't always there!), you can get treatment early so that it doesn't become a chronic issue. Please do this for your own health and for the health of those you love.

And I've written about our experiences with Lyme Disease before here and here and here.